Sunday, March 17, 2013

A Cancer Mitigator

First let me say thank you to everyone that participated in the art auction, both purchasing or donating. I would like to address that more fully, but something else is on my mind right now.

A friend of mine just posted that a friend of hers just died of cancer today. I have been doing this for just about three years now. Any time I hear or read something like this, I am at a loss for what to say. And I can say a lot. But sometimes words just fail me.

I want to do something. Anything. Rally the troops... I just want to give people a hug.

Working with a local company for a charity fundraiser in the last few weeks, I was asked to write up a short introduction about who I am and my experience with Team In Training. This is what I sent them.


When the doctor tells you you have cancer, it does not seem real. I was shocked and in disbelief, not knowing what to think or how to feel. You look in the mirror. You force yourself to say the words, as if repetition makes it tangible, “...I have cancer.” …None of it makes any sense.

Hello. My name is Ryan. I am a cancer survivor. Well, I think... Hm. I am a cancer... mitigator? Delayer of cancer? I am a cancer ...temporary reprieve-er.

I was diagnosed in April of 2010. Marginal zone, stage three, Non Hodgkins Lymphoma. Cancer. Too wide spread throughout my body to be cut out. In November of that same year, and just as I was starting another round of chemo, I attended my first Team In Training meeting. Team In Training, or TEAM or TNT, is the fundraising arm of the Leukemia and Lymphoma Society (LLS). They do endurance events like marathons, half marathons, triathlons, etc. all to raise money for cancer research and treatment. The meeting was an informational recruiting meeting. It was in a pub and there was a good amount of people there. They spoke a little about the nuts and bolts of TNT and LLS. They had a participant and cancer survivor talk as well. I had a hard time keeping the tears from falling, and the fear and doubt from showing. After the meeting I called my wife and choked out, "I have to do this." Without hesitation, she said ok. I think I needed to prove to myself that I could still be me, that I could still live. I signed up having never liked distance running, having never even run a 5K, and not knowing if my doctors would let me.

My oncologist conditionally gave approval for my running a half marathon (13.1 miles) only if I was willing to walk when needed. He would not approve a full marathon. I promised. During training for my first half marathon, I was going through rounds of treatment. I had my long day on Thursdays (5+ hours), then a short day on Friday, then we had our group run on Saturdays. The Saturday group runs became my support group. Being there helped me feel better. It helped me feel like I could make it through treatment. It was empowering when I just wanted to quit.

When I began the season, I thought with my former rugby player ego, "Shoot! I can run a full marathon. Cancer won't stop me." I had finished another round of chemo by about a month, and literally one week before the race I was hospitalized with pneumonia. By the time I got to the starting line of the Seattle Rock and Roll Marathon (2011), I just wanted to cross the finish line on my own feet, without dying.

That weekend changed my life.

One of my teammates ran with me the whole way. I don't remember exactly where, but about mile 7 or 8, I happened to look down at the back of her race shirt. There is a place on the back of all TEAM shirts to write in the names of those for whom you run, those that keep you going, those you remember. I saw my name there. My name on her shirt. Surely that must have been someone else. So I asked. "Is that, is that MY name?" Yes. I still get choked up over that. That I could have such an impact on another in a positive way. It is a powerful thing. I found out later several of my teammates that weekend had done the same. I had no idea.

I went through two years of chemo therapy. While going through treatment, I got sick. I lost my hair. I lost liters of blood. I had trips to the ER. Emotionally and physically, I was worn out. I was a wreck. I am now considered to be in remission. My tests results "show no sign of the disease." What does that mean? I still have to go in for treatment. It's a very light dose once every two months. It's still no “treat.” This process has proved to significantly delay the eventual return of cancer. Yes, eventual. It will return. So am I a survivor?

I am a survivor of multiple half marathons while going through rounds and rounds of chemo. I am member of Team In Training. I do it because I hope that someday cancer is forgotten. That modern medicine renders cancer not only completely treatable, but preventable. Cancer should become a shadow of our past.

Team In Training and the LLS are not just about running to me. They are about realizing we can do something about the situation(s) in which we find ourselves. It would be easy to turn our face to the wall and give up. It would be easy to stay down when knocked over. But the LLS strives to help people overcome those times. "Why do we fall sir? So we might learn to pick ourselves up." Sometimes we need help. Sometimes it may be as simple as Alfred's reminder to Bruce. Get up. Yes you can.

You can learn about the advances that the LLS has funded. Drugs that have been developed using the money the LLS raises. Cancers that are treated because of those efforts. Maybe more important than that, to me anyway, is the lesson the LLS gives us all. It is about getting up when we fall down. It is about helping others to do the same. It is about how we can overcome the emotional tides that affects us all.

Cancer is something I will have to live with forever. Mine is one that will come back. I will always worry about blood counts. I will always worry about other people being sick around me. But if I could do any one thing in this life, I would like to hold people's hands, lift them when they have fallen, encourage them, remind them of the things in this world worth living for, remind them of the brilliant person they are.

My teammates got me through it all. They still do. I know I can never repay them for what they have done to keep me going. I just hope I can pay it forward. Cancer has changed me. I am a part of Team In Training. I am a part of the Leukemia and Lymphoma Society. I will be forever.

I thank you with all my heart.

GO TEAM!!

-Ryan

Wednesday, February 27, 2013

Art For a Cure: Art Work

Here are the prints that will be available in the auction. The auction store will be on eBay at stores.ebay.com/Art-For-a-Cure. Since these items will not be live until Sunday the 3rd, they do not show up in the store. In order to make sure you can see them and look at what is available before the auction, I have listed them all here. The outstanding few that are not yet listed should be up by the end of this Friday.

Please tell all your friends to come bid and by something as all proceeds will go to the Leukemia and Lymphoma Society to help fight cancer.

Thank you. And a special thank you to all the artists that have donated their work.

-Ryan


"Bird"
Mix Media by
Laura Buller


"Flame Hair"
Mix Media by
Laura Buller


"Kick"
Watercolor by
Laura Buller


"Tentacle Lady"
Mixed Media by
Laura Buller


"Hunters"
Silkscreen by
Josh Cochran


"Christmas"
Digital by
Cassandra Worthington


"Crocodile Tears"
Watercolor on watercolor paper by
Peter de Seve
*Available only in the 11x14 size.


"Summer Getaway"
Watercolor on watercolor paper by
Peter de Seve
*Available only in the 11x14 size.


"Tag Sale"
Watercolor on watercolor paper by
Peter de Seve
*Available only in the 11x14 size.


"Toothbrush"
Oil, Acrylic, Pastel by
Justin Garrity


"Flower"
Photo on metallic paper by
Chris Hatch


"Fancy Lady"
Ink by
W. Ryan Hatch


"NYC"
Mix Media by
W. Ryan Hatch


"The South Lands"
Digital by
W. Ryan Hatch


"You!"
Mix Media by
Michael Hilliard


"Stop and Go"
Marker by
Michael Hilliard


"Frederick at the Fridge"
Watercolor by
David Hohn


"Red Riding Hood"
Watercolor by
David Hohn


"Blue"
Mix Media by
AJ Juson


"Women 1"
Lithograph by
YuChia Kao


"Women 2"
Lithograph by
YuChia Kao


"Houctopus"
Digital by
YuChia Kao


"Monster"
Pen by
YuChia Kao


"Cicada 1"
Lithograph, Artist’s Proof ORIGINAL by
YuChia Kao


"Orange"
Lithograph, Artist’s Proof ORIGINAL by
YuChia Kao


"Sister's Gold"
Paint by
Alex Miller


"Bike Ride"
Digital by
Norman Morana


"Fishing Day"
Digital by
Norman Morana


"The Flying Box"
Mixed Media by
Norman Morana


"Haunting"
Digital by
Norman Morana


"Refresh"
Digital by
Norman Morana


"Canyon"
Photo by
Kyle Morgan


"Flower"
Photo by
Kyle Morgan


"Dancer"
Mix Media by
Anna Owen


"Orange"
Paint by
Anna Owen


"Red"
Watercolor by
Anna Owen


"Baby Hayden"
Digital Paint by
Becky Steele


"Red"
Acrylic by
Becky Steele


"Bicycle"
Watercolor and Digital by
Lee White
*Available only in the 11x14 size.


"Blue"
Paint by
Allyson Willsey


"Red"
Paint by
Allyson Willsey


Additional print(s) may still be coming in. Check back or just go to the eBay store on Sunday March 3rd.

Thank you!

Wednesday, February 20, 2013

Art For a Cure Update

The donated prints are rolling in and I could not be more pleased! More information will come as I get the eBay page up but the dates for the auction will be March 3rd-9th. That starts in a week and a half and will run for one week. 

In the mean time, here are a few of the donated pieces. This first one is from Peter de Seve, title: "Crocodile Tears"


This is from Norman Morana, title: "Haunting"


This is from Anna Owen, title: "Dancer"

Thursday, February 14, 2013

Art For A Cure!

Shortly after I started running with Team In Training, I was thinking about ideas for fundraising and thought I wanted to do an art sale in some form. But I did not know how to go about it, worrying about the logistics. The idea was tabled in hopes of figuring it out later. Well now is later. Three years later.

The idea had been ever present in my mind. One of those that always sits on the back burner and never lets you forget about it. Finally I gave in. I thought about how I could make it work. This is my result.

In a few short weeks, maybe less, I will get an eBay page set up for an art auction. I contacted a number of artists, mostly I knew from art school. Some were just wild shot's in the dark. No way these guys would even respond. I am quite pleased to say that some of the big time artists responded and are participating too. How cool is that?!

The eBay site will sell prints of original works by each artist. There will be only two prints available of each piece, and 8x10 and 11x14 inch print. The auction functions like normal, you may bid higher and higher to be the highest bidder before the closing date/time for the auction. Following the conclusion of the auction, I will ship the print(s) to the highest bidders with a charity donation receipt and a thank you. Your donation/purchase will be of course applied to the Team In Training account I am using this season to raise money for the Leukemia and Lymphoma Society.

Artists have already started sending in work for this and I am blown away by their response. If this works out as well as I think it is going to, this will become an anual event. Hopefully getting bigger every year.

Some of the big artists that have already committed and/or sent prints include Peter deSeve, Lee White, and Josh Cochran.

This image is one of mine and is from a children's book I am working on. Therefore, it will NOT be auctioned off at this time. But I wanted to give an idea of what might be in the auction. There is no theme, pieces are whatever the artist wishes to submit. When I get a full or final list of participating artists this year, I will post that as well.



For now, I would love for everyone to pass this along and help generate as much hype as possible.

Thank you very much,

-Ryan

Friday, February 8, 2013

Stupid Immune System!

Have you ever seen the movie Bubble Boy staring a young Jake Gyllenhaal? It's one of those fantastic "stupid-humor" movies like Bill and Ted's, Spinal Tap, Animal House, etc. As the introduction to his character, Jimmy Livingston [Gyllenhaal] tells the audience in first person narration, "I was born without any immunities."

I say that a lot.

Though I was not born without immunities, mine failed me in my early 30's. I like to think that has made me follow the advice of Thoreau "to live deep and suck out all the marrow of life," helping others do the same. Sometimes I am successful in doing that with humor [be that heavily steeped in sarcasm]. Other times, it just makes me weep. Oh well. You can't win them all and I am doing so much better than I was last year or the year before at this time.

That said, I went in to see my GP (general practitioner) the other day because I am now a justified hypochondriac with these symptoms.

- Severe fatigue.
- Headache.
- Sore throat, which sometimes can be very severe.
- Chills, followed by a fever.
- Muscle aches.

Can you guess what I have? They tested for Strep Throat, negative. They tested for Flu, negative. They did a blood draw. Aaannnd....? How the bajeebers does one get Mono at 37, having been married for 11+ years and neither of us making out with anyone but each other???

Turns out the virus can lay dormant for 18 months in a persons system. The most common and successful means of transfer is exchange of saliva. Maybe I took a drink for the wrong drinking fountain. Maybe that frozen pole I licked on a double-dog-dare was... wait a minute! That wasn't me. Well it looks like the world will never know. But we can surmise that if I was born with immunities, I would have been able to fight this off.

I am excited to get over this to see how much my running improves without the additional fatigue. :)

Friday, February 1, 2013

Powerful Conversations

Jack is now in First grade. Over the summer, one of his friends from Kindergarten, Matt [not his real name], had his dad diagnosed with terminal Myeloma. They said he would be gone before Christmas. The week before school started (three-four months early), his dad passed away. In September, Mandy texted me the conversation Jack relayed to her that day.

Jack: "Hi Matt."
Matt: "Hi Jack. My dad died."
Jack: "Yeah. I know. That's really sad."
Matt: "Yeah. Let's go play."


...I could not keep it together that day. I had to go home and hug my kids.

You want to know why I run with Team In Training? Why do I fundraise for them? I do it because I hope that some day, conversations like this never happen. That they are forgotten as modern medicine makes cancer not only completely treatable, even at very late stages, but preventable. Cancer should become a shadow of our past. Not our present and every day.

I run for Team In Training because my first team got me through chemo. My second season and team got me through more chemo. And now, I try to help motivate others to make it through their hard times, chemo or not.

That is why I run. Please donate and help end cancer. I set up a widget on the side of my blog here. You can donate directly to the LLS and Team In Training there, and get an instant email confirmation. Please.

I thank you with all my heart.

GO TEAM!!

Monday, January 7, 2013

Running and running and running some more...

Alright, I am running and running some more. I think this is the year [2013] that I really become a runner. There is a very big difference between "I am running a half marathon in a few months," versus looking and your shoes and thinking, "Is it time? Can I go run yet? do I have time for 7 or 8 miles or can I only squeeze in a 5k? Well if it's only a 5k, I can try to push my pace harder to make it count more..." And those thoughts go on. I can tell I am leaning more and more to that side, and I like that. So this is the year I think the "runner" in me really goes through gestation to blossom into full womanhood... or something like that.

While I am training for the Vancouver BC half marathon in early May, I have been on a much more advanced training program. Most of my teammates that will be running that half with me have worked up to a 5 mile run on the long day. I have been running 11 or 12 miles instead. It was not a sudden jump, I had been doing more already so I just rolled with it.

These longer runs are dual purpose. The obvious is for the running and training. But the other is a litmus test on how I am doing with my health. Previous posts here tell about the blood loss when training for H2C 2012. As is the case with any time I have any weird health issue now, I get more paranoid about that issue.

This last Saturday's run was supposed to be a 12 mile run, I did only 11 because I made a wrong turn somewhere. Oh well. I was not worried about the extra mile. The first half of my run was great. I ran a very comfortable 10:30 per mile pace which has been my normal pace lately without trying to push myself to get faster. So I was happy with that. The latter half of my run though was almost two minutes per mile slower and it was brutal. I was starting to get dizzy by the end and feeling more like the terrible training run for H2C when I was two liters low on my blood.

Sunday, I took a two hour nap because I could not function. Today, Monday, I am worse off. I am dizzy and spacey and just feel horrible. I have called oncology and asked to go in to do a blood draw to see if I am low or if I am just getting sick. Not that I ever thought I wish for sickness, but I do now. I hope I am just fighting a cold.

Here, I am posting a picture of myself just a year ago. This is me, in treatment, well in my house but while going through a round of treatment. This blood loss or sickness thing, I am hoping it does not spin me back into another hairless round of treatment.



You know, while on the topic of hairlessness... I thought it would be totally fine because I liked to cut my hair super short anyway. But when it comes down to it, when your hair pulls out without pain, as do your eyebrows, it is hard. Emotionally. For those women that must go this, I do truly empathize. I am sorry.

...Anyway, I'm done with this post for now.